1 Year Later From Becoming An Amputee One year ago on October 7, 2017 I was in an accident on vacation in Austin, Texas. I went right through the pro…
What is Pierre Robin Sequence? Pierre Robin Sequence (Pierre Robin Syndrome) is a very rare genetic condition that around only 50 babies a year statistically are born with. This is…
Ulcerative Colitis Diagnosis At 16 years old, I was worrying about normal teenager things: school, boys, clothes, and exams. Never did I think at 16 I would have to worry about s…
do not hide My name is Anna, I'm 27 and I'm from Rome. I was born without my hand and the left forearm due to a drug my mother took during her pregnancy. I had t…
Growing up with a chronic illness At the age of 11, I was diagnosed with Complex Regional Pain Syndrome. This is a neuromuscular disease affecting the sympathetic and autonomic nervou…
Jonathan has taught us so much! Our son Jonathan was born with a very rare genetical desease: a form of primordial dwarfism called MOPD TYPE 1. To our knowledge there are less than …
Birth Story After I got pregnant, I envisioned my little baby for a million times, she would be a beautiful mix baby, healthy, and smart. My labor was short, thr…
Living with Arthritis at just 11 My name is Alyssa, I’m 18 years old and I was diagnosed with Juvenile Idiopathic Arthritis at 11 years old. My life since then has been a roller coas…
What is inspiration porn? According to the Huffington Post, inspiration porn occurs when someone’s accomplishments are inspirational due to the fact that they have a disabilit…
I am in a constant state of awe at the connections we make because of Down syndrome. Jacob & I were recently in Chicago for a baby moon before Little Sister gets here. On our last night, we decided to go to a nice dinner on the “M…
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