About me Hello! I've wanted to write about my condition for a while now, however, I've never known where to write it until now! My name is Paige Deas…
About me Hello! I've wanted to write about my condition for a while now, however, I've never known where to write it until now! My name is Paige Dease, I'm 17…
#thanksFriedreich It’s crazy to think that it took me getting diagnosed with a life-shortening, debilitating, progressive neuro-muscular disorder in order to pop the s…
The Accident That Changed My Life Hi, my name is Nekia. I am 25 years old. In October 2015 I was in a near fatal car accident in which I lost my foot/ankle on site. This caused me to …
They thought I was a healthy baby girl Hi, my name is Maureen. I was born in Jakarta, Indonesia in 1994. I'm the only daugther in my family, so my family was very excited when I was born. …
"Alone we are rare, together we are strong" - Misha Dream Walker Hi! My name is Misha, and I live in Lima, Peru. I was born with a rare condition called Arthrogryposis multiplex Congenita or AMC. The doctors said I…
Overcoming the Odds Eva was born at 32 weeks, with a rare birth defect called an omphalocele. It is not know what causes an omphalocele, but luckily we live close …
Condolances When Matt was born the doctor didn't place him in my parents arms right away. He first told them he was a "mongoloid" (an out dated word even a…
Our Story I am Gwen, wife to Scott, mom to Cal (age 18), Claire (age 16) & Lola (age 11). We also have two whippets named Romeo & Cash. Cash just so ha…
Aria's Song When Aria was born she could not maintain her body temperature on her own. She was in the NICU for 2 weeks as the doctors tried to uncover a cause fo…
Live,Laugh,Love In 2009 my whole world turned whole world turned upside down. I was hit by a drunk driver as a waiting for my friends car at valet. It happened…
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