Life support Seven years ago, in 2012, I was resuscitated twice, then placed on life support. The doctors didn’t believe I would live through the fir…
Finding Out Autumn Has Osteogenesis Imperfecta When I first found out I was pregnant with baby Autumn, my boyfriend and I were so excited. We planned out my whole pregnancy. I planned on having he…
My Crohns story Hope, strength, courage. Three small words with such impactful meaning. Hope—a feeling of trust; Strength—the quality or state of being strong; Coura…
How i cope living with cmt disease Hi, my name is Elijah Armes, I'm 5 years old and in year one at school. I enjoy my life to the fullest. I love singing, dancing and playing with my t…
Defining accessibility Hi! My name is Mary. I am 41 years old and I have spastic hemiplegic Cerebral Palsy. I was adopted from Beirut, Lebanon at the age of ten months. I w…
I can & I will! I was born in Leicester and at the age of five, I contracted polio. I was one of the last few people in the UK to have contacted polio and it initial…
Our life with Dyrk1a Syndrome Hello everyone, my name is Jennifer! I am a mother of two boys, I am a military spouse, and I am an advocate for our youngest son, Jaxson, who has Dy…
My Life In A Nutshell I was born with a rare genetical disorder called Osteogenesis Imperfecta (OI). It is commonly known as Brittle Bone Disease. There are many types of …
Height is just a measurement I’m more than a statistic, 1 in 40,000. I’m a daughter and a sister. A woman living with achondroplasia, the most common form of dwarfism. A co…
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