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DISABILITY ADVOCACY

Fibromyalgia, P.O.T.S AND TRAUMA
 OTHERS

My diagnosis I have fibromyalgia- this looks like muscle pain, exhaustion, fatigue, and personally also heat exhaustion. No doctors really know where…

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Other

Fibromyalgia, P.O.T.S AND TRAUMA
Other

A Life on Wheels

About Me Hi my name's @rosslannon, I'm 28 years old and I am a Lifestyle & Disability blogger from Cornwall, UK. I am passionate about all things media r…
Spinal Cord Injury (SCI)

Hope on the horizon - battling back from paralysis
Muscular Dystrophy

New Dad Seeks Approval For Life Changing Treatment

New Dad Seeks Approval For Life Changing Treatment Rare Disease Day is an important day to me and many others around the world who are working towards social equity, healthcare, and access to diagnose…
Rare Disease & Syndrome

Jessi Hooper
Other

PNES and Me

My story I used to dance 30 hours a week on a professional level. Now I’m barely walking. What happened? PNES did. PNES are Psychogenic Non Epileptic Seizures…
Rare Disease & Syndrome

Lauren’s story
Other

My Story- Accessibility with Aspen Sage

My Story- Accessibility with Aspen Sage Hello! My name is Aspen Sage & this is my story. In September 2021, I was inpatient for mental health after experiencing a traumatic event that l…
Muscular Dystrophy

Living with Limb Girdle Muscular Dystrophy
Cerebral Palsy (CP)

Ian Against All Odds

Meet Ian! He is 3.5 years old with a diagnosis of HIE (hypoxic ischemic encephalopathy) and cerebral palsy. He is also non-verbal and g-tube dependent. Ian suf…
Spinal Cord Injury (SCI)

My Disability Pride
Other

Finding joy from bed

Living with Severe ME Hi, I’m Katie (@katie_andm.e), I’m 17 and I live with severe ME.  Since birth I have been easily susceptible to infections and viruses. At 13 I …
Cerebral Palsy (CP)

A Strong Person Looks at a Challenge and Gives it a Wink
Spinal Cord Injury (SCI)

Born a Warrior

1. "A warrior is someone who understands their needs and is fearless in telling others what they are, even at the risk of being vulnerable."- 4warriors.…
Rare Disease & Syndrome

Fertility with Inflammatory Bowel Disease
Rare Disease & Syndrome

I recommend Part of the Pack assistance dogs for all disabilities

PRODUCT RECOMMENDATION
Spinal Cord Injury (SCI)

THE ELEPHANT IN THE ROOM
Cerebral Palsy (CP)

My journey to being authentically me

Don’t be afraid of being authentically you!!! My name is Nina and I’m a Spanish 30-year-old woman born with a mild congenital Cereblar Palsy. Although CP has never stopped me from doing everythin…
Other

You're Stronger Than you Think

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