Little and Blessed My name is Rocio de Jesus. From the Dominican Republic. I'm 25 years old. At 2 years old I was diagnosed with a Kozlowski-type spo…
Keeping A Smile with Ehlers-Danlos Syndrome (EDS) I’m Josie and I’m a 25 year old wife and mother with Ehlers-Danlos Syndrome (EDS). EDS is a degenerative genetic condition that makes my collagen def…
Golden Har Syndrome & Vater’s syndrome My name is Rasheera Dopson. I’m 28 years old and I was born with two rare diseases: Golden Har Syndrome and Vater’s syndrome. Both of these condition…
Our Miracle Baby: Colton Colton was born at 3:08 PM on November 30, 2014, after a very hard labor with several health complications. We spent six days in the NICU, due to swe…
Unlearning to relearn When Laksh was born, I felt cheated and betrayed. I left like, despite doing everything right, I got a baby that was not “normal”. We barely had any …
Yes, I am disabled. I’m Rebecca Cliffe, 25 and live such a great life. I have a boyfriend who loves me, family and friends who do nothing but love and support me. I trav…
Advocating for Amputees I was born with tibial hemimelia, which means I have non-functioning knee joints and ankles, as well as ectrodactyly hands (4 fingers on my left hand…
My history with chronic illness I’ve lived with chronic health problems for over nine years now. I’ve faced a lot of difficult to deal with situations, but one of the hardest things…
Story On October 27, 2014, a tumor was found in my left elbow. It was really big and the doctor’s prognosis wasn’t good. After many tests, I wa…
Unknown Polymyositis 11 years ago I was diagnosed with a muscle disease called Polymyositis. This has been a long hard journey. I began being sick after giving birth to m…
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