My Journey being Rare My name is Christina, and I'm 29 years old. I’ve been using Instagram for about 7 years to share my experience with chronic ill…
This Is What Inclusion Looks Like... Josh and Dave hang out. A lot. They talk about everything. They're coworkers and they've known each other over three years. They have a lot of the sa…
My daughter’s early struggles My daughter, Ashanti, was diagnosed at age three years and eight months old. The diagnosis came after she was very behind in walking and talking. Her…
What? Hi! My name is Anisha Yellamraju and I am 16 years old. I recently started a blog to raise awareness of rare disorders. In this blog, I will intervie…
Muscular Dystrophy Limb Girdle Diagnosis My name is Maria and I was diagnosed with Muscular Dystrophy at the age of nineteen whilst studying at university. This is a muscle-wasting disease i…
Little and Blessed My name is Rocio de Jesus. From the Dominican Republic. I'm 25 years old. At 2 years old I was diagnosed with a Kozlowski-type spondylometaphysial dy…
6 years after my spinal cord injury My whole life changed on 21/08/2013. It doesn’t matter that I’m alive now. My previous life died in my accident. After 6 years of waiting and fightin…
I Have Achondroplasia My name is Hielke (@kleine_knoalster), I am 19 years old and from the Netherlands. I have Achondroplasia which means that I'm only 1 meter 25 tall. M…
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