Superhero Sam On 01/02/19, my (@lusindfoz) son, Sam, died of pneumonia complications. His kidneys and liver shut down until his heart stopped. Sam wa…
FHL1 Help please I'm Thiago Felstinsky & I'm 15 years old from Buenos Aires, Argentina. At the age of 9 I was diagnosed with muscular dystrophy of the FHL1 gene. …
Starting from the Beginning When I was little, I dreamed about becoming a professional soccer player. My parents always taught me that anything was possible and to follow my dre…
The story of Thiago Josue & Leandro Jose We are Thiago Josue & Leandro Jose (@gemelos_guerrero) and we're 3-year-old twins. Our story is based on a testimony that love can cross all bord…
Diagnoses My name is Gísli Snær and I will be 1.5 years in January (but 16 months adjusted). When my mummy was pregnant, all scans looked good but pap-a hormon…
Meet Anna After a nearly three year odyssey of specialist appointments and medical testing, Anna was diagnosed with Charcot-Marie-Tooth Disease at age four.&nb…
About the blog Hi, my name Asaf, and I have a brother named Erez who has special needs. Erez loves to look at YouTube blogs and play with his iPad. When he asked me…
What is Pierre Robin Syndrome? This is our beautiful daughter Aria Beth who was born with a very rare syndrome called Pierre Robin Syndrome. Only 50 babies are born each year in th…
With family love like mine you can do anything I have Cerebral Palsy and face challenges every day, but I do not let it get in the way of my dreams. I love to perform and make YouTube videos. My Y…
Our undiagnosed daughter takes on the world... When Eudora was born in 2014, my husband and I were expecting her to have a crooked foot, a treatable condition that would "in no way hold her back."
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