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CHILDHOOD

The first real battle in my life. The fight for inclusion
 DAILY LIVING & MOBILITY

My fight for inclusion started at the age of 5 I went to many therapists as a kid, I went toa disabilty center to work on making me an independent peโ€ฆ

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Arthrogryposis Multiplex Congenita (AMC)

The first real battle in my life. The fight for inclusion
Rare Disease & Syndrome

Sophia: The Shining Star

๐’๐จ๐ฉ๐ก๐ข๐š ๐ญ๐š๐ฎ๐ ๐ก๐ญ ๐ฆ๐ž ๐ญ๐จ ๐œ๐ก๐จ๐จ๐ฌ๐ž ๐ฅ๐จ๐ฏ๐ž, ๐ฌ๐จ ๐ˆ'๐ฆ ๐œ๐ก๐จ๐จ๐ฌ๐ข๐ง๐  ๐ฅ๐จ๐ฏ๐ž This recent video & post of Sophia that I shared on the sixth month anniversary of her death has made its way around the internet, which means thโ€ฆ
Other

Lily’s Little Lungs
Down Syndrome

Elijah and Crumpet

Elijah and Crumpet - Behind The Seams Elijah is nearly 10 years old. Crumpet is kind of also 10. Iโ€™m Dad and Iโ€™m 46, in case you were wondering. Most people know me as Crumpet from Elijahโ€ฆ
Rare Disease & Syndrome

Sam: Superhero & Warrior
Muscular Dystrophy

FHL1

FHL1 Help please I'm Thiago Felstinsky & I'm 15 years old from Buenos Aires, Argentina. At the age of 9 I was diagnosed with muscular dystrophy of the FHL1 gene. โ€ฆ
Cerebral Palsy (CP)

Ivy’s Hemiplegia story
Other

How Getting an Ostomy Changed my Life

Starting from the Beginning When I was little, I dreamed about becoming a professional soccer player. My parents always taught me that anything was possible and to follow my dreโ€ฆ
Down Syndrome

Changing the face of beauty
Rare Disease & Syndrome

The Love of Twins

The story of Thiago Josue & Leandro Jose We are Thiago Josue & Leandro Jose (@gemelos_guerrero) and we're 3-year-old twins. Our story is based on a testimony that love can cross all bordโ€ฆ
Rare Disease & Syndrome

Our Life Shared: Kaylee's Story
Learning Disability

Isn’t life just a wonderful roller coster ride?

Diagnoses My name is Gรญsli Snรฆr and I will be 1.5 years in January (but 16 months adjusted). When my mummy was pregnant, all scans looked good but pap-a hormonโ€ฆ
Congenital Limb Condition

More than just a lucky fin
Other

Shining Through with Charcot-Marie-Tooth Disease

Meet Anna After a nearly three year odyssey of specialist appointments and medical testing, Anna was diagnosed with Charcot-Marie-Tooth Disease at age four.&nbโ€ฆ
Cerebral Palsy (CP)

Christian Kilduff's Story of Survival
Rare Disease & Syndrome

Erez Gaon's Special World YouTube Blog

About the blog Hi, my name Asaf, and I have a brother named Erez who has special needs. Erez loves to look at YouTube blogs and play with his iPad. When he asked meโ€ฆ
Autism Spectrum Disorder (ASD)

Autism's Meaning & Identity
Rare Disease & Syndrome

Aria Beth’s journey with Pierre Robin syndrome

What is Pierre Robin Syndrome? This is our beautiful daughter Aria Beth who was born with a very rare syndrome called Pierre Robin Syndrome. Only 50 babies are born each year in thโ€ฆ
Cerebral Palsy (CP)

Choosing hope with Cerebral Palsy

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