Lily’s Lung Story Lily was born at 24+3 weighing 504 grams due to IUGR and restricted cord blood flow. Her twin sister passed three days before they …
Elijah and Crumpet - Behind The Seams Elijah is nearly 10 years old. Crumpet is kind of also 10. I’m Dad and I’m 46, in case you were wondering. Most people know me as Crumpet from Elijah…
FHL1 Help please I'm Thiago Felstinsky & I'm 15 years old from Buenos Aires, Argentina. At the age of 9 I was diagnosed with muscular dystrophy of the FHL1 gene. …
Starting from the Beginning When I was little, I dreamed about becoming a professional soccer player. My parents always taught me that anything was possible and to follow my dre…
The story of Thiago Josue & Leandro Jose We are Thiago Josue & Leandro Jose (@gemelos_guerrero) and we're 3-year-old twins. Our story is based on a testimony that love can cross all bord…
Diagnoses My name is Gísli Snær and I will be 1.5 years in January (but 16 months adjusted). When my mummy was pregnant, all scans looked good but pap-a hormon…
Meet Anna After a nearly three year odyssey of specialist appointments and medical testing, Anna was diagnosed with Charcot-Marie-Tooth Disease at age four.&nb…
About the blog Hi, my name Asaf, and I have a brother named Erez who has special needs. Erez loves to look at YouTube blogs and play with his iPad. When he asked me…
What is Pierre Robin Syndrome? This is our beautiful daughter Aria Beth who was born with a very rare syndrome called Pierre Robin Syndrome. Only 50 babies are born each year in th…
With family love like mine you can do anything I have Cerebral Palsy and face challenges every day, but I do not let it get in the way of my dreams. I love to perform and make YouTube videos. My Y…
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