Rare Disease United Foundation
Our mission is to address the unmet needs of the rare disease community including raising awareness of rare diseases, reduce diagnosis time, reimbursement and other insurance issues, and relieving the isolation felt by those living rare.
Rare Disease United Foundation (RDUF) is a non-disease specific organization working on issues facing the rare disease community. RDUF is the voice of rare. They work on a state, national and global level to improve the lives of those living with a rare disease through programs to raise awareness, advocate and provide support to the rare disease community. They are also a leader in rare disease advocacy on a national level working on federal legislation and programs to unify the global rare disease community.