DAILY LIVING & MOBILITY

The Reassurance I Need Because of Living With A Disability

Cerebral Palsy (CP)

Aly Brown

Appreciating Life With A Disability

"What is one thing related to your health you find yourself apologizing for, even when you know it’s out of your control? Write a note you can read back to yourself when you need a moment of empowerment or to remind yourself you don’t have to apologize." - The Mighty   

The one thing I constantly feel I need to apologize for is feeling as if I am bugging people since my disability seems to come big in waves; all of the information comes at once just about every six months. I feel as if my disability takes a toll on relationships, but if friendships are true then people aren't bothered by them and will support me regardless. Health issues are a part of my story, and if I kept that away from everyone, I wouldn't be my true self, and wouldn't be able to make a difference in this world. I know I say this a lot, but the one thing that gets me through the tough health times and when I feel as if I am bugging people even though I am not is my college graduation card I received from a mentor. This card has a lot of reminders of why the relationship I share with him is so important. This card reminds me of how proud he is of me and the meaningful conversations we have/had that tell me never to give up on my dreams regardless of the challenges that get in my way. Having that one person that's always there helps me realize how important it is to be a support system for others and allow others to understand who I truly am.   

Another thing I find myself apologizing for is the load of responsibility others carry for me. Because of my balance and strength issues, people have to constantly worry if I will have enough strength to complete every day tasks such as making my own meal, taking my own shower or crawling up the stairs, while other days I can go above and beyond those expectations. Just the other night, my Mom had to carry me up the stairs because I couldn't do it myself, but two days prior I was able to drive to a doctors appointment. I should be a 20-year-old who is moved out of her parents' house, taking care of my own pet and living the independent dream. I should be hitting the same milestones as everyone my age.   

I want to apologize, but I know I shouldn't because I am teaching others how to appreciate the little things in life. Appreciate how someone tells you not to give up on something no matter how hard it seems. Appreciate someone telling you how proud they are of you. Appreciate how much you mean to someone or how much you've made a difference in their life. Appreciate that they believe in you. Appreciate all of this because that person or those people are not going to be here forever. Continue to tell these people how much they mean to you. Tell them you are trying your hardest to do the best you can, but you appreciate the patience and love they share with you. I have made it a lot farther than most of society thought I would. It may take a longer time, but I have hope that all of my dreams will come true; thanks to everyone who pushes me to be my best.

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