DAILY LIVING & MOBILITY

Young and Disabled with Chronic Pain

Scoliosis

Katya Macedo

Our Existence Is Valuable!

Hello, my name is Katya Elizabeth and I am 26 years old. I have been suffering for quite a while now with chronic pain. I never got help or went to a doctor in the past because medical insurance was a big let down for me, but every summer my symptoms worsened.

I finally figured out that I suffer from Dystonia, Scoliosis, Diplopia, and other not so pleasant conditions which are quite embarrassing. I didn’t really know what was going on- all I knew was that I didn’t have balance while walking and my legs didn’t want to do what I wanted them to do. I started seeing double, which is scary and I was very dizy. Vertigo is not fun. I visited many hospitals, met some unpleasant doctors who didn’t take the time to examine me properly. I was so grateful when I figured out which special clinic I needed to go to. Dystonia is a movement disorder in which muscles contract un-voluntary. This explained all my pain back then. The pain was so bad that I couldn’t even talk because my voice box was spasming so badly. My feet turn inward, but luckily I am now going to physical therapy.

I didn’t want to share my story because I feel like all these beautiful people here sharing their story have more to look up to then me. I’m still fighting every day, good days and bad days. I feel like a cute pirate sometimes, which is not embarrassing because I have a cool cane. I learned that people love me and that’s worth the fight! My go-to for pain relief will have to be cbd oil, gummies etc. I hope to make new friends who can relate.

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