yoocan - Katya Macedo - Young and Disabled with Chronic Pain
DAILY LIVING & MOBILITY

Young and Disabled with Chronic Pain

Scoliosis

Katya Macedo

Our Existence Is Valuable!

Hello, my name is Katya Elizabeth and I am 26 years old. I have been suffering for quite a while now with chronic pain. I never got help or went to a doctor in the past because medical insurance was a big let down for me, but every summer my symptoms worsened.

I finally figured out that I suffer from Dystonia, Scoliosis, Diplopia, and other not so pleasant conditions which are quite embarrassing. I didn’t really know what was going on- all I knew was that I didn’t have balance while walking and my legs didn’t want to do what I wanted them to do. I started seeing double, which is scary and I was very dizy. Vertigo is not fun. I visited many hospitals, met some unpleasant doctors who didn’t take the time to examine me properly. I was so grateful when I figured out which special clinic I needed to go to. Dystonia is a movement disorder in which muscles contract un-voluntary. This explained all my pain back then. The pain was so bad that I couldn’t even talk because my voice box was spasming so badly. My feet turn inward, but luckily I am now going to physical therapy.

I didn’t want to share my story because I feel like all these beautiful people here sharing their story have more to look up to then me. I’m still fighting every day, good days and bad days. I feel like a cute pirate sometimes, which is not embarrassing because I have a cool cane. I learned that people love me and that’s worth the fight! My go-to for pain relief will have to be cbd oil, gummies etc. I hope to make new friends who can relate.

Tags: , , , , , ,

EMPOWER OTHERS!

Share this story to help change someone's life

WELCOME TO YOOCAN

THE GLOBAL COLLABORATIVE COMMUNITY FOR SHARING EXPERIENCES AND KNOWLEDGE BY AND FOR PEOPLE WITH DISABILITIES, SO NO ONE FEELS ALONE.

BY CREATING AN ACCOUNT YOU AGREE TO THE TERMS OF SERVICE ANDPRIVACY POLICY.