DAILY LIVING & MOBILITY

It's A Complicated Life

Rare Disease & Syndrome

Kierha Harris

My illness story

I started to become very sick after having a small surgery to my hand which resulted in mass bleeding, 8 haematomas, 11 surgeries, carpal tunnel syndrome and compartment syndrome along with a 7 week hospital admission. Since then I have been diagnosed with over 18 diseases. The main ones because Common-Variable immunodeficiency, Complex Regional Pain Syndrome, G-HSD (similar to hEDS) and a very rare bleeding disorder with no name! I have fought sepsis and septic shock and beat it 11 times! I have been wheelchair bound and unable to walk since a small operation to an infected wound on my leg, which lead to my CRPS spreading in January 2017.

Advocating for myself

My mum and I have had to fight for the best care for me as I have been left completely dependent on others and depressed because the doctors treating me gave me the wrong medications and care. My right leg and left arm are completely stuck at a 90 degree angle, and I’m in excruciating pain 24/7. I take 45 pills a day that essentially keep me alive!

YOU CAN DO ANYTHING

My school really failed me, I was a straight A student, but after becoming sick I was unable to sit my GCSEs. So I had no qualifications. But, I picked myself up and enrolled myself into an art course at college and haven’t looked back! I’ve met so many amazing people and they have made my life with disabilities so much easier! My friends take me to London and other places and treat me like a normal person! Please remember, YOU CAN DO ANYTHING!

EMPOWER OTHERS!

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