DAILY LIVING & MOBILITY

My Rare Disease: Spinal Amyotrophy of Kugelberg Welander

Rare Disease & Syndrome

Aida

Living with Spinal Amyotrophy of Kugelberg Welander

My name is Aida. I am 31 years old. I am from Kyrgyzstan in Asia. I have Spinal Amyotrophy of Kugelberg Welander. I was diagnosed with this rare disease at the age of 10. Since 2015 I have been using a wheelchair. I am a master at giving manicures and being a make-up artist. Now I'm learning to do eyelash extensions. I really love fashion and cool things. I want to become a model. I like to travel, play chess, hip-hop, dance, and the Internet. 😂 "Hope with you. "Act and Enjoy!" ✊

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