DAILY LIVING & MOBILITY

Osteogenesis Imperfecta doesn't stop Hadley from Surfing

Other

Kendra Larsen

Fracture #88 won't stop me

Hadley’s newest fracture #88 happened only a few weeks ago, but that wasn’t going to stop her from trying to surf with her dad. As her mom I can honestly say I was scared and so worried for Hadley. I just kept thinking, all it will take is a single crash and she’s going to have multiple broken bones. I kept questioning why Eric and I are letting Hadley try this.... On the other hand we both really try not to place any kind of limits on her and what she can do and try. I was just hoping and praying she would decide not to try to surf with her dad. I felt a sigh of relief when she came over to me and told me she was nervous right before she entered the water. I thought for sure this meant she wasn’t going to do it, I even tried to talk her out of it... However Hadley assured me that she really WANTED to surf, and that she was just a little nervous.. So Hadley did Surf broken foot and all!!! Hadley loved it and even did it twice.

A little about Hadley

Hadley Larsen was born in November 2012. She was diagnosed with a rare genetic disorder called Osteogenesis Imperfecta, or brittle bone disease. Osteogenesis Imperfect or OI is caused by a lack of collagen produced by the bone which in turn causes the bones to be extremely brittle and fragile. This can produce many problems for the individual, and not only in the bones, but in any area of the body that requires collagen. Fracturing is very common. In many cases without treatment and surgery the individual will never be able to walk. Depending on the severity of the form it can even cause death. Hadley has had 88 fractures that we know of and it is certain that she will have more in the future. She has had 15 surgeries with more to come. Hadley never lets her disease stop her from living life to the fullest.

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