About me & Spinal Muscular Atrophy
Hi, I'm Sophie. I have a genetic condition called Spinal Muscular Atrophy, which basically means there is something wrong with my spine that prevents my brain from connecting with my legs. I've had around an estimated 300 hospital appointments, 110 X-rays, 7 surgeries, and I've been in a wheelchair all my life. This doesn't stop me though. I have huge dreams of playing boccia in the Paralympics one day, and I love writing. For me, I still think that with a bit of prep, anything is possible. A question I get asked a lot is "Do you ever wish you could walk?". A couple of years ago, my answer would've been something along the lines of "I would do anything to walk". But now? I wouldn't change it for the world. I mean, I don't doubt the awesomeness of peeing by yourself. But I've learned overtime to love my life. Even though these legs don't work, I am kicking ass! 😜😉❤
