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WillingWilson: My story with Quadriplegic Cerebral Palsy

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Advice about Special Needs & Quadriplegic Cerebral palsy

Wilson is nearly 3 years old and has Quadriplegic Cerebra Palsy, meaning he can’t sit up, crawl or walk unassisted. Wilson was born just over 9 weeks prematurely, but we didn’t find out about Wilson’s Cerebral Palsy until he was 13 months old. He had an MRI scan and at this point we were told Wilson may never feed himself, he may never talk and most certainly would never be able to walk. They prepared us for the worst and we felt crushed. But not for long! It just made us that much more determined to prove them wrong, a scan or diagnosis won’t decide Wilson’s future for him! If you follow his Instagram account (@WillingWilson) you will be able to see just how wrong those professionals were. Wilson LOVES his food, is a chatterbox and is already starting to take some steps with the help of his walking frame. AMAZING!! We are also currently fundraising for a surgery called selective dorsal rhizotomy (SDR) and the surgeon performing the surgery has predicted great things for Wilson after the surgery and believes he will walk with the help of crutches in the future. If I was to give anyone any advice when it comes to speaking with professionals about special needs is yes, take in what they say. But most importantly use your instinct. Just because they say something will never happen doesn’t mean it’s true, Wilson can prove that!

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