DAILY LIVING & MOBILITY

Breaking Barriers with Muscular Dystrophy Duchenne

Muscular Dystrophy

Christoph Mühlbacher

Accept Yourself with Muscular Dystrophy Duchenne

My name is Christoph, I'm 26 years old and I was diagnosed with a chronic disease called Muscular Dystrophy Duchenne. The muscles in my body lack the dystrophin protein, which means that I have less strength then most of you. Consequently, my daily life relies on the help of others in everything I do. As my disease has a progressive aspect I was luckily enough to walk until primary school giving me the opportunity to visit class just as everyone else was doing even later on in wheelchair. This was only possible due to a strong network of friendships and my mother who truly fought for me and still does. There´s always a fighting mother behind every Duchenne child they used to say and that´s a fact you can´t deny.

my legacy to society

Despite my disability I managed to make my way up to university where I did my bachelors degree in biology. Right after that I found myself exactly in the job I was focusing on. Additionally to that I got the best colleagues one could dream of and totally fell in love with the work I applied for. Unfortunately the lung function I have is based on muscles that also decrease with Duchenne. Therefore, I have been using a ventilation machine for several years now. Since pneumonia two years ago, my life depends on pressure controlled ventilation and staying healthy became a daily routine in my life. I use my ventilation machine about 10 to 12 hours a day now. Recently, I realized my advocacy capacity for Duchenne and for everyone struggling with chronic diseases. I want to break down barriers of fear not only for affected people but also for society. Creating awareness of ventilation systems in general is a huge topic as I feel people close their eyes towards this and there´s no open discussion. The most important message I can offer for everyone’s life: Do not lose your humor. There is humor in everything and with humor. yoocandoanything!

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