DAILY LIVING & MOBILITY

Shining Through with Charcot-Marie-Tooth Disease

Other

Anna

Meet Anna

After a nearly three year odyssey of specialist appointments and medical testing, Anna was diagnosed with Charcot-Marie-Tooth Disease at age four.  Her symptoms are progressive and similar to those of Muscular Dystrophy.  

Living with a progressive neuromuscular disease has not dampened Anna's positivity.  This little girl's spirit shines through with love, kindness, and humor.  Everywhere she goes - school, therapy appointments, doctors' offices, church, playgrounds, etc. - Anna meets friends and brightens peoples' days.  

Of course, as her mother, it is absolutely difficult to watch Anna lose strength as her disease takes hold.  Our family's goal for her is independence and we work toward that each day.  

We'd love to connect with other families with young CMT patients.

EMPOWER OTHERS!

Share this story to help change someone's life

WELCOME TO YOOCAN

THE GLOBAL COLLABORATIVE COMMUNITY FOR SHARING EXPERIENCES AND KNOWLEDGE BY AND FOR PEOPLE WITH DISABILITIES, SO NO ONE FEELS ALONE.

BY CREATING AN ACCOUNT YOU AGREE TO THE TERMS OF SERVICE ANDPRIVACY POLICY.

Please provide your name to be displayed in the chat room.