yoocan - Joanne Becker - Being Stubborn about Muscular Dystrophy
DAILY LIVING & MOBILITY

Being Stubborn about Muscular Dystrophy

Muscular Dystrophy

Joanne Becker

Being Stubborn about Muscular Dystrophy

I was diagnosed with GNE Myopathy, a form of Muscular Dystrophy, in my late twenties. It is untreatable, and progressively weakening my legs and arms. I know that I only have a few years until I need to use a wheelchair, so I asked myself what I wanted to see when I looked back on this part of my life.

I'd always wanted to travel, so I packed up everything and went to India and Asia for three months this year, with just a walking stick for company. It was really physically (and mentally) challenging, but I am so glad I did it. I was stubbornly determined to at least try, and I proved to myself that I can still do hard things, even if I have to adapt and slow down my approach somewhat.

Now I am building a life that will make me happy, even as I face increasing mobility issues.  Things can feel very difficult,  but I'm determined to keep finding the best in every situation.

Tags: , ,

EMPOWER OTHERS!

Share this story to help change someone's life

WELCOME TO YOOCAN

THE GLOBAL COLLABORATIVE COMMUNITY FOR SHARING EXPERIENCES AND KNOWLEDGE BY AND FOR PEOPLE WITH DISABILITIES, SO NO ONE FEELS ALONE.

BY CREATING AN ACCOUNT YOU AGREE TO THE TERMS OF SERVICE ANDPRIVACY POLICY.