OTHERS

Sebastian’s Journey with Spina Bifida

Spina Bifida (SB)

Sebastian Marrero

Sebastian’s Life

Sebastian was diagnosed with Spina Bifida, Hydrocephalus, & Arnold Chiari 2 Malformation before he was born. At the same appointment after the diagnosis, the doctors proceeded to tell us that he had little to no quality of life. His defect was so large that he would basically be paralyzed, confined to a wheelchair, no control of any of his body. They told us that our best option would be to terminate the pregnancy because the life he would now have would be one not worth living. Even knowing all of this we trusted in God & chose Sebastian. He’s now also been diagnosed with Sensory Processing Disorder & failure to thrive for poor weight gain/ height growth but, he is he proving everyone wrong. He is walking, thriving, stubborn, he is headstrong, determined! His life is full of purpose & we can’t wait to see all of the future accomplishments that are to come!!

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