DAILY LIVING & MOBILITY

FHL1

Muscular Dystrophy

Thiago Felstinsky

FHL1 Help please

I'm Thiago Felstinsky & I'm 15 years old from Buenos Aires, Argentina. At the age of 9 I was diagnosed with muscular dystrophy of the FHL1 gene. The truth is that for now there is no research for a treatment or a cure for the disease, as well as a decision to change my life and so that it can be a life, so that we can create social networks to find people with the same disease, and when we have, also, the doctors, that interest us more than in a project for the cure if they can share my profile. Following me @fhl1Internacional on Instagram would be helpful. "Just because things are a certain way does not mean you can't change them."    

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