FHL1 Help please
I'm Thiago Felstinsky & I'm 15 years old from Buenos Aires, Argentina. At the age of 9 I was diagnosed with muscular dystrophy of the FHL1 gene. The truth is that for now there is no research for a treatment or a cure for the disease, as well as a decision to change my life and so that it can be a life, so that we can create social networks to find people with the same disease, and when we have, also, the doctors, that interest us more than in a project for the cure if they can share my profile. Following me @fhl1Internacional on Instagram would be helpful. "Just because things are a certain way does not mean you can't change them."
Tags:
MOBILITY
,
SWIM & DIVE
,
DISABILITY SOLUTIONS
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ART
,
DAILY LIFE
,
CHILDHOOD
,
ADAPTIVE TRAVEL
,
EDUCATION
,
ASSISTIVE TECHNOLOGY
,
MARTIAL ARTS
,
MENTAL HEALTH
,
DISABILITY ADVOCACY
