DAILY LIVING & MOBILITY

It's Okay to Delay with Chronic Illness

Other

Ariel L.

Putting words into practice

[this paragraph is adapted from a blog post the author previously published, 'Ten Things I Tell Myself to Make Life Worth Living']

This is a mantra that I’m just learning. It is a challenge, and by no means am I proficient. And while on the surface this phrase seems to echo sentiments that it’s “never too late,” it means something a little bit differently to me.

There’s a popular rationalization for transness out there that implies that a trans person is X gender trapped in a Y-sexed body. Personally, that is not my trans narrative. I have perceived myself, however, as the hapless protagonist in a cosmic narrative of a Can-Doer trapped within a Do-Little. I am predictably-unpredictably hindered, hampered, prohibited and limited by disabling chronic illness.

I idealize the tenets of minimalism and idolize the gurus who promise that the key to a fulfilling and adventurous life is the process of simplifying day-to-day tasks and purging material objects. The irony is that I live a fairly consistently low-impact lifestyle. I don’t have much to “declutter.” I don’t have an overflowing calendar brimming with engagements. I don’t keep many obligations. I scarcely have anything to write in a to-do list or planner or place in a twee inbox.

When I do accumulate tasks, I embark on a journey of epic proportions to hit all the high notes. When the mania strikes, I start plotting. I scheme out several “appointments”.

And then I hit my nadir.

For me, fatigue, flares and malaise are byproducts of ambition. I quickly become sobered by the humiliation that I have to suspend my schedule. And then I feel ashamed for it.

But then I defer back to what I learned all along from my minimalist icons. I appreciate what has “sparked joy” within me in my accomplishments. I appreciate the effort of taking on days, weeks, even months’ worth of accumulation and pre-planning to achieve. I appreciate that a “rest period” is an opportunity to regenerate. If delaying means reveling in the highs and charting a new course, then it’s okay to delay.

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