HOBBIES

Able Art with Osteogenesis Imperfecta

Rare Disease & Syndrome

Jacob Cooper

Art is Freedom with Osteogenesis Imperfecta

My name is Jacob Cooper. I am 27 and live in Little Hocking, Ohio. On August 2, 1991, I was born with a rare disease called Osteogenesis Imperfecta (aka brittle bones). When I was born my parents and the doctors had no idea that I had brittle bones until I wouldn’t stop crying and one doctor noticed that my body structure was a little different and immediately thought of Osteogenesis Imperfecta. Soon after I was born they diagnosed me and told my parents that I didn’t have a very long a life spanned and to take me home and enjoy the time they had with me but due to my parents not hesitating one bit, they found the right doctors and therapists to give them the correct information on how to care for me. There doesn’t go a day where I don’t think about how brave my parents are! The diagnosis of brittle bones means that your bones are very fragile and end up breaking quite often in life. While growing up I had very many fractures and had lots of time healing. While I was healing my grandma and my dad always motivated me and taught me how to use creativity to stay positive.

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