Hi, my name is Mariano Landa, I'm 38 years old and I have Friedreich's ataxia. It's a rare disease, basically, I have less coordination, less stability, and muscular dystrophy.
There's no cure or anything to slow the symptoms, but what you can do is exercise. At least you can try it, with help if you need it, but never stop trying. Although the disease is genetic and from birth, I was diagnosed at 19 years old and I started using a wheelchair 10 years ago. I am a dancer and also a PC technician (I work on my own). I started in the art world doing arnes (or aerial dance), where after 5 years and several performances I was introduced to danceability and I loved it! One day I received a call, I was invited to a dance rehearsal and that's how I started with the dance company "sin fronterass". This is what I'm doing to this day. I would not change my life for anything! It is very important for you and how you are, who are the people around you. Your family, your friends or who you choose as your partner. I was so very lucky.
I was also selected as the winner of the last ALPI awards, which are delivered by trajectory to different people with disabilities. That being said, I believe there are many people who deserve a lot of awards, we are only the visible face of many good things that are happening.
Dancing is beautiful and fulfilling. When you are with the right people it changes your life!