Hello, my name is Ricardo, simply known as Ricky. I am from Portugal and 21 years of age. I have a disease called Spinal Muscular Atrophy, which has confined me to the wheel since only God knows.
As a neuromuscular disease, Spinal Muscular Atrophy (SMA) is a rare disease with a prevalence rate of 1 in every 6,000 children – so, you can see how lucky I am. Within the human body, two proteins help develop and maintain muscle tissue. When a person has SMA, it implies that one of the two proteins is lacking. Consequently, it will result in poor development and progressive deterioration of the muscles over time. Basically, we can say that I have been a lazy, lucky lad from the fetal stage. After all, who else can feel like “Oh, yeah I choose not to develop this protein,” if not a stubborn person like me?
I am very active in communities online and I wanted to share my story because I think it's very important for us to be there and support each other. It is important for us to know each other's stories. I know I love sharing my thoughts and my journey.
I just created a blog where I document my journey and I'd love you guys to see it 👉 @rickmonis it's in my bio, hope you enjoy it. ☺️ 👉 @rickmonis
I hope to see you guys follow and reach out!