Hi, I'm Mia. I was born on May 13th, 2019, in Nuremberg. I'm actually a normal girl... but I got the special equipment from God. Instead of the usual 46 chromosomes, I have 47, I have Trisomy 21, which means I have a much bigger heart, an extra load of sweetness and a big fighting spirit. My parents found out in the 21 SSW that I am something special, unfortunately also with several serious heart defects. But they decided to keep me & love me since the first second, as I am. My start was not easy, I had to fight for my life in the first 3 months. I got a lung banding during this time because my heart did not pump the blood into my body but almost only into my lungs. After I mastered this well, I got a tracheotomy because I almost suffocated & a PEG because I didn't gain weight because of my heart. On 27.08.2019 I was finally allowed to go home with Mama & Papa + nursing service. Of course, I have a lot of equipment at home (respirator, aspirator, food pump, etc.). Since I am at home I have been developing myself super. Everyone is so happy with me & mum always says I am an absolute fighter & sunshine. I make my parents' lives so much more colorful & better. Everybody who gets to know me is immediately hooked on me, I wrap them all around my little finger very quickly. Currently, I am waiting for a surgery appointment for my heart. Oh yes, my heart is even repairing itself partially. No doctor believed in that anymore, but I'm different from the others... like the Terminator. Still, there's a lot to be fixed. In the course of this year & next year, I will get rid of my PEG & the tracheostomy will come out too. We are really looking forward to it.
I hope I could give you a little insight & we would be happy if you follow us on Instagram. The page is managed by my mom :) Love, Mia with mom & dad