Sharing my story
Hi, my name is Mark and I live with Duchenne.
The intention of my page is to share my life story with the whole World. I want to tell everyone how it is to live with Duchenne Muscular Dystrophy.
It's important to share our experiences with each other, to spread awareness, and to raise money. This is in the importance of the further investigation of Duchenne. I hope that a solution will be found, a solution to stabilize this disease and perhaps cure it. Once we find the right key that opens the door to a life without Duchenne, a life without limits. But you can't put all your hope on it because every time you think they have found a solution that ultimately yields nothing, you always fall back into a black hole. Keep hoping but don't make an obsession out of it!
So I would like to share the following with you. Don't forget the most important thing in life, enjoy your life. You can only make the best of your life in the circumstances that you have. It's not because you have a progressive disease that you can't live a happy life anymore. All we have to decide is what to do with the time that is given to us. Enjoy life!