In a nutshell
Osaru, Ebuwa, and Adamosa are three siblings diagnosed with a genetic disorder condition called Spinal Muscular Atrophy Type 5 with Distal Neuropathy. Osaru is 8 years old. She's an art lover and just completed 2nd grade. Ebuwa (6) starts 1st grade in the fall. She's the fashion 'queen' of our home. Adamosa will be 5 in July. He's in PPCD Pre K and his love for music is overwhelming. There's no manual for Raising three kids with disabilities. Some would argue that there's no manual for raising kids at all. Going out as a family and experiencing a semblance of normal life is almost a luxury. Two medical caregivers, three Powered wheelchairs, two oxygen tanks, two ventilators, and a bunch of other medically necessary equipment is what we need to fit into a vehicle even for a trip as casual as to the neighborhood Walmart. We just purchased a Mercedes Sprinter van, big enough to take us all. We're trying to raise money to convert it and make it fully accessible. We have a GoFundMe campaign set up for this.
Despite all the obstacles these three are a blessing and make our lives more wonderful every day.
