yoocan - Louise - Being disabled is a full time job
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Being disabled is a full time job

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Louise

Being disabled is a full time job

Being disabled is a full-time job โ™ฟ๏ธ People rarely think about how much time it takes on a daily basis when you live with a disability. My daily routines take much longer than most peoples because I need help with everything. Everything from getting up in the morning to eating to whatever simply takes longer because of my disability ๐ŸŒธ During the day I have a lot of disability-related things that I need to take care of. It can be things like doctor appointments, physiotherapy, lung exercises, and other activities regarding my health ๐Ÿ˜Š Then thereโ€™s all the paperwork. Paperwork to make sure that I have (and continue to get) all the disability aids and medical devices that I need. It takes a lot of emails, applications, and legal knowledge to make sure that I get these things, and sometimes it takes months, even years before it happens ๐Ÿ™„ Then there are my assistants. My assistants make it possible for me to live in my own home and do whatever I want. Having assistants means that Iโ€™m the boss. So I have to make work schedules, make sure they get paid, find solutions when they go on vacation or call in sick. I always have to have a Plan B and preferably also a Plan C ๐Ÿ˜Š

For me, being disabled means that Iโ€™ve become pretty good at planning and organizing ๐Ÿ˜Š But no matter how much I plan ahead I have to be prepared to change everything and improvise. Maybe my wheelchair breaks down, maybe the car lift stops working or maybe something Iโ€™ve never imagined happens. And whatever may happen I have to deal with it. Iโ€™m not off on the weekends because my life goes on - there are no time outs ๐Ÿ˜Š So next time you come across someone with a disability, then think about how much time and effort they put into simply living their daily life - something non-disabled people often take for granted ๐Ÿ˜Š

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