Chronically unbelievable
Hello, my name is Jazmin Campbell and I recently was diagnosed with a rare autoimmune disease called Stiff Person syndrome. This disease affects 1 person out of a million and usually those 30-60 years of age. However, this for me wasn’t the case. I am 18 years old and there are few to none worldwide who have been diagnosed at this age. Finding a treatment that works and finding medications that can keep me safe and comfortable has been extremely hard. IVIG is what we are doing now as well as steroids to slow down the making of the GABA protein. Currently, I am solely dependent on others to move me from place to place due to loss of mobility in legs, trunk, arms, neck, and hands. I also have a GJ tube where I am fed levity for nutrients and water due to swallowing issues and delayed stomach movement. I also experience pseudoseizures that cause me to go unconscious and throw my body in different ways. These “episodes “ can last up to 1 hour and occur multiple times a day, causing me to not be able to breathe, talk, and become tachycardic. Although some new obstacles came drastically, I was still able to graduate and have a 4.158 GPA. I encourage you to let nothing get in the way of your Set goals! Furthermore, I have been a Make A Wish kid all of my life, dealing with many life-threatening illnesses. Some of which come from my gene mutation MTHFR and having a missing chromosome, others are what doctors scratch their heads and call a mystery. Diagnosis I've had before stiff-person syndrome is Seizures, focal seizures, migraines, hypersomnia, TIA’s, tracheolaryngomalacia, asthma, vocal cord dysfunction, pericarditis, ASD, recurrent DVT’s, pulmonary embolism, and more. I encourage all of you to keep sharing your story and advocating for your medical needs! To keep up with my story follow me on @Its.Jazmin.Renee and check out my website and YouTube Channel!
