You can see the fight in my eyes
An afternoon of doctors and the day could not have been more tiring. After spending a few heavy nights without sleeping due to pain, the day would be heavy for anyone. The good thing is that they adjusted my analgesia and I hope I can sleep 😴
I have better tolerated my nutrition because of my #gjtube
The neuro did not make me so happy 😢 I need a #MRI of the spine, why? Because the neuropathy in my legs has not improved as it should, they are still very shaky and reflexes greatly increased, and I am beginning to have data on neuropathy in my hands and well that does worry me. We cannot lower our guard, so the dose of steroid will remain high even if I do not want it, to prevent it from advancing. Therefore we will do the botox for my bladder or that is the plan with the urologist and I have great faith that it will help me with my urinary incontinence 🙏🏻
I have been without infections for 37 days, thank God, with the #crohn monster under control and improving day by day, if everything continues on this good path there will be incredible improvements in the following months and treatment plans that we can finally do if God wants. I am remaining positive, I ask you to do the same. Just thinking of everything you are willing to do, to be better, shows that we can survive anything, that we can do anything!