Building a kinder world now
Hi, my name is Shaina Shishler and I'm a six-year-old super-rare kid, because I have a super-rare condition called BPAN. I live with my family in Johannesburg, South Africa.
Between 2017 and 2018, I had a series of life-threatening seizures. I spent too much time in hospitals, including a week on life support. In 2019, I was diagnosed with BPAN, which is an ultra-rare neurodegenerative condition.
The diagnosis came as a huge shock to my family, who have to deal with all kinds of daily challenges that I face.
I speak very little, but I LOVE to laugh, sing and dance. Somehow, without saying much, I bring out kindness in everyone I meet- even total strangers. That inspired my parents and siblings to start a special kindness campaign for me to encourage people to share acts of kindness. We've just started, but it's really exciting and very inspiring to see people get involved.
We'd love you to participate too. Please share your #kindnessmoments with my special hashtag #akinderworldnow.