yoocan - Amanda Steijlen - My Wheely Lovely Life
OTHERS

My Wheely Lovely Life

Muscular Dystrophy

Amanda Steijlen

About me

Hi! My name is Amanda! @amandasteijlen on Instagram! I am 27 years old and live in Tampa, Florida.
I have a super sweet husband and two golden doodles. We travel the US in our RV.
I share my life journey with a chronic illness and generalized anxiety disorder on Instagram and on my website www.amandasteijlen.com.
I founded a nonprofit organization that supports the disabled community and am in the process of becoming a rehabilitation and mental health counselor!

Diagnosis

My journey all began when I was about 8 years old. My parents started to realize that my "tippy-toe princess walk" was not exactly what they thought it was. I started to lose the ability to run, climb stairs, get up off the floor, etc. After many many doctors and an incorrect diagnosis, at the age of 10, I was finally diagnosed with Limb Girdle Muscular Dystrophy Type 2A. This disorder is caused by the inability of my body to create a protein that builds muscle. It is progressive and over time causes the degradation of muscle.

Chronic Illness & Mental Health Advocacy

I am a spokesperson and social media advocate that brings awareness to chronic illness and mental health!
I am a certified meditation instructor and am also on my way to being able to provide mental health counseling. I plan to specialize in those with chronic illnesses.

Wheely Big Dreams Nonprofit Organization

I founded a nonprofit organization that provides adaptive devices and support for those with physical disabilities. 
Over the years I have been blessed with support from my family for all the costly devices that I needed that were not covered by insurance. I am so excited to be able to change the lives of others by giving them these live changing items! 
Without the assistance to get a wheelchair-accessible van, power wheel, offroad wheelchair, etc. my life would not be nearly the same.
Please visit our website to donate! You can make such a huge difference in someone's life!

Tags: , , , , , , , , , ,

EMPOWER OTHERS!

Share this story to help change someone's life

WELCOME TO YOOCAN

THE GLOBAL COLLABORATIVE COMMUNITY FOR SHARING EXPERIENCES AND KNOWLEDGE BY AND FOR PEOPLE WITH DISABILITIES, SO NO ONE FEELS ALONE.

BY CREATING AN ACCOUNT YOU AGREE TO THE TERMS OF SERVICE ANDPRIVACY POLICY.