yoocan - Ashley Sanchez - My Chronic Illness Story
DAILY LIVING & MOBILITY

My Chronic Illness Story

Rare Disease & Syndrome

Ashley Sanchez

My Daily Life

In November of 2020, I had Covid. It wasn't mild, and it was definitely not fun. I told myself that going to the hospital was not an option. I should have gone. For almost two months, I couldn't breathe or speak without coughing. It was such a hard and terrifying experience. Fast forward to now: I've been diagnosed with Dysautonomia Long Haul Covid due to having it back in 2020. I've been suffering from extreme amounts of stomach pain, nausea, insomnia, and sometimes breathing is still hard. I had no idea what was wrong. I saw so many specialists and even went to the Mayo Clinic. After months and months of tests, hospital visits, and medications, I finally got an answer to what was wrong from the Watson Clinic. It definitely helped knowing, but not having a cure was crushing. I had already been diagnosed with epilepsy when I was 13, fibromyalgia when I was 28, pcos when I was 16, and suffer from extreme migraines. This wasn't something I wanted to hear. A new problem I have to face and adjust my life to. However, I stayed as positive as possible. After almost a year of being on long-term medical leave, I got to go back to work. It's still a daily struggle, but the little wins help. It's definitely hard when people look at you and think you're okay and like to judge. I know in this community everyone understands exactly what I'm going through. I'm taking it day by day, and not letting my chronic illness win. I go out as much as possible and rest when I need it. I'm thankful I have a support system that understands when I cancel and when I need help. They have been with me on a journey that is not the best, but they keep me going. We are strong warriors. Smile bright and stay positive 💜💜

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