yoocan - Lauren Shaw - Lauren’s story
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Lauren’s story

Rare Disease & Syndrome

Lauren Shaw

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My story: Hi my name is Lauren (@Ashley_And_Lauren) I’m an 18 year old Irish woman (she/her) living with a rare neuromuscular disease called Friedreich’s Ataxia. I have been living with this awful progressive disability since the 30th of April 2009 (13 years). Since I got diagnosed with Friedreich’s Ataxia, I’ve been diagnosed with scoliosis, chronic migraines, cardiomyopathy, ansd, eupd\bpd, sleep apnea and neuropathy. I am currently trying to live my life the best I can with my cat. My dream is to one day see a world that is accessible to all!

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