DAILY LIVING & MOBILITY

Rubie's Winning!

Spina Bifida (SB)

Ciara Heffernan

Nothing will hold her down.. not even Spina Bifida!

We went for our 20 week anomaly scan expecting to come out frustrated we wouldn't find out the sex of our baby because he/she would have their legs crossed. When we actually came out we realized tgere is more to pregnancy than knowing the gender of your baby and sometimes those things you never think will happen to you.. really will happen to you!

Lucky

"There's something wrong with baby's brain, spine and legs." Those are words I'll never forget. That day I felt like my world had come crashing down! My partner and I went through a rollercoaster of emotions after finding out our baby would be born with Spina Bifida. We weren't prepared for this! The rest of my pregnancy was the usual antenatal care and additional ultra sound scans to make sure the baby hadn't developed hydrocephalus (fluid on the brain) which normally comes with Spina Bifida. We were lucky that Rubie never did develop hydrocephalus and as soon as she was born we knew she would be a fighter and she was absolutely beautiful!

We couldn't imagine our lives without her

Rubie was born with Spina Bifida, bilateral hip dysplasia, hyper extensive knees and bilateral talipes. Her first operation was at 1 day old to close the lesion on her back and she had had a further 4 surgeries on her hips, knee and feet. I wish I knew back then what I knew now because I wouldn't be worried at all! Rubie has exceeded all of her expectations.. she sat unaided at 6 months, she army crawled, learned to self-propel in her zip zac! She then graduated to her big girl wheelchair and took to it like a duck to water! More recently she was given a standing frame with wheels which she loves and managed to take her first step with me holding her arms! Rubie loves playing, especially with dolls & she loves her iPad! Her big sister Lillie is great with her and does all she can to help care for Rubie! Rubie brings so much light to our lives and is an absolute delight. She lets nothing stand in her way and is an absolute pleasure! We couldn't imagine our lives without her! ❤

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