DAILY LIVING & MOBILITY

Arthrogryposis Story: Our Blessed Warrior

Arthrogryposis Multiplex Congenita (AMC)

Asher

Born with 11 birth defects

Hello world! My name is Asher Liam. I am about to be a year and a half. I was born in the beginning of July 2015. My family knew from when I was 13 weeks in the womb that I was going to be different than other babies. The doctors told my mother that I could possibly have gastroschisis and 1 other birth defect. After I was born and further testing was done my mother was told that I had ELEVEN different birth defects. Of the eleven, one of them is a lifelong disability called Arthrogryposis.

Arthogryposis

Arthrogryposis means that my joints don't really move as much as they should. The positive thing about this neurological disorder is that it is at it's worst at birth, so I can only get better as the years go by. I had an MRI of my brain and they said it's perfect! My heart and lungs according to the doctors are extremely healthy & that made everyone happy. Month's later I found out that you have Coronary Artery Fistula which meant you have an extra artery pumping blood into one of your chambers. After multiple check ups, the extra artery is doing no damage and you have normal blood flow! When I was ready to be discharged from the hospital my mother thought it would be best to have me transferred to a Pediatric Center for a little over a month for Speech Therapy so that I can possible get off of the feeding tube.  Since my family see's I'll need a feeding tube for a while they all decided it was best that I come home. It is very hard for me to swallow liquids because I have laryngomalasia but as I learn and grow I am hoping I can drink thin liquids and eat solids! I have been having therapy since I was in the NICU and I am enrolled in Early Intervention so I have therapists that come to my home and also receive outpatient therapy in a hospital for my splinting and casting! Because of the amazing therapy I am receiving, prayers and the grace of God I am only now down to 2 birth defects! Of course the Arthrogryposis will be with me forever but can only get better! Guess what else? My laryngomalasia is almost gone as well! THANK GOD. My family really does consider me a miracle and a gift from God! I am hoping you guys will continue to follow me through my journey and see how much progress I will make with all your love, support and prayers! Please follow me on my journey on my website AsherLiamOurBlessedWarrior.Org and my mother's website SecretLifeOfASpecialNeedsMom.Org

EMPOWER OTHERS!

Share this story to help change someone's life

WELCOME TO YOOCAN

THE GLOBAL COLLABORATIVE COMMUNITY FOR SHARING EXPERIENCES AND KNOWLEDGE BY AND FOR PEOPLE WITH DISABILITIES, SO NO ONE FEELS ALONE.

BY CREATING AN ACCOUNT YOU AGREE TO THE TERMS OF SERVICE ANDPRIVACY POLICY.

Please provide your name to be displayed in the chat room.