yoocan - Hege Olsvoll - How I've Adapted To A Life With Dyskinetic Cerebral Palsy
DAILY LIVING & MOBILITY

How I've Adapted To A Life With Dyskinetic Cerebral Palsy

Cerebral Palsy (CP)

Hege Olsvoll

The Diagnosis: Dyskinetic Cerebral Palsy

Hi! My name is Embla, and I live off the west coast of Norway. The day I was born was supposed to be a great day in my family.  Finally a girl was about to come into a family with only boys.  Due to a hypoxic ischemic brain injury caused by medical errors in the hospital, it went quite different. I am 100% invalid but I do not have any cognitive challenges. I was born 2 days overdue, and the investigation afterwards told us that if I was only born 15 minutes earlier with a C-section, I would have been like every other girl today, running and jumping around.  Instead I was diagnosed with Dyskinetic Cerebral Palsy.

Tough Start to Life with Dyskinetic Cerebral Palsy

Well, I had a really tough start of my life after I was diagnosed with Dyskinetic Cerebral Palsy, but as most kids in my situation I turned out to be a real trooper (according to everyone who knows me 😉). I work hard, train everyday, and I am a champ on my Tobii, which is my eye gazing device. I have close to 3,000 symbols that I use to speak with, and argue with by two brothers and order lasagne and cake from my parents 😉. I have started to write small words, and I can read a bit. My goal is to have 14,000 words by August this year when I start school! With my Tobii nothing can stop me, and when I grow up I would like to have my own pastry shop❤️💫. I am a very happy girl who loves to spend time with my family.

We love to do outdoors activities like hiking, fishing, making bonfires, camping, and just playing & having fun. I love dogs and my greatest wish is to have my own dog when I am ten years old. What me and my family experienced has taught us throughout these six years being on a roller coaster is that if you never give up, great things will happen - that's for sure! ❤️

#CP #cpkidsrock #eyegazing #tobii #languageispower #mystory

Tags: , ,

EMPOWER OTHERS!

Share this story to help change someone's life

WELCOME TO YOOCAN

THE GLOBAL COLLABORATIVE COMMUNITY FOR SHARING EXPERIENCES AND KNOWLEDGE BY AND FOR PEOPLE WITH DISABILITIES, SO NO ONE FEELS ALONE.

BY CREATING AN ACCOUNT YOU AGREE TO THE TERMS OF SERVICE ANDPRIVACY POLICY.