How I wish the Brain grew all throughout the life or could heal itself and no one would ever have to suffer from any condition caused by brain damage.
Kyra's struggle started with the birth. She was 12 days overdue, born at 41 weeks & 5 days. I was in labor for more than 48 hrs, my water broke and I had no knowledge when. I also got a fever during the time. I was hooked to oxygen, I.V and fetal monitor for almost 8 hrs to see if the labor would progress. At one point, the fetal monitor showed decresed baby activity and a dropping heart rate. She was stuck in the canal very very low where the doctors could feel her head but she woulnt move. They told me that she had to be immediately taken out. She was rushed to the OT, given spinal block anaesthesia and within few minutes Kyra was born. She had respiratory troubles and Doctors said that she needed a chest x-ray to figure out why. She was also started on antibiotics immediately as they feared she had contacted an infection as I had a fever. She spent the day in NICU Incubator. She could not regulate her temperature. An x-ray revealed nothing significant and they could not find the source of infection or as to why she could not regulate her temperature. They did a spinal tap on her to be sure and found nothing.
The Diagnosis: Cerebral Palsy
It was only when she turned 9 months old and would not crawl that we started observing more and more and noticed she would not use her left hand at all. We as ignorant parents thought she was a "righty", but something always seemed off. I started early intervention therpy for her. I kept bugging my pediatrician and she kept saying that I am over thinking as a first time parent. After many many requests she finally said that she does see that something is off, by this time Kyra was 11 months old and crawling a little. She thought it was Erbs Palsy where the shoulder muscles are involved and may be that is causing her to not use it. We were very adamant now for a Nuerologist reference. We saw a Pediatric Nuerologist who took an MRI of her brain and spine and confirmed that Kyra had damage in the right side of her brain due to lack of oxygen probaby during the birth process which led to hypoxia and some of the brain cells dying. This condition is called Cerebral Palsy.
The War Against Cerebral Palsy.
The doctor told us she had moderate brain damage, and was not sure how much it would affect her. He said she might not walk, might not talk, but again all of this will depend on Kyra's will since the brain is highly elastic and she can rewire it. But it will require lot of effort from the parent's and child's side. Thus began the War against Cerebral Palsy.
We educated ourselves, joined a wonderful support group for parent, found therapist who could help, found books to help.
Here are some of the things we tried:
1. Scalp Acupuncture: 1x per week for a year
2. Kinesio Taping: I found a book on pediatric version, learned all about muscles and how they work and where to tie tape to help. We still do this.
3. Physical Therapy
4. Occupational therapy
5. Speech Therapy
6. Deep Tissue Massages
7. Constraint Therapy: I do this at home as I cannot afford to go to professionals who do them.
8. Aqua Therapy and Swimming
9. Chiropractic Adjustments.
10. Anat Baniel Method: I found a book & self educated myself on this one as well.
Most of my time is spent learning about therapies, creative a fun environment for Kyra to learn in and not feel bored. She survived a pediatric stroke where she could have died as well; she is my superhero. Kyra fought so hard to survive, and she is still fighting hard. She can now walk independently, talk in senteces, and she is currently learning to jump. She is happy and thats all that matters!