חיי היומיום וניידות

Our Baby Is Not Defined By Epilepsy & Cerebral Palsy

חסר תרגום בשפה עברית. מוצגת שפה אנגלית
שיתוק מוחין

Jenny Lee Park

We Finally Found A Diagnosis: Epilepsy & Cerebral Palsy

Our sweet Josie girl was born almost eleven months ago, and she has taught our family a lifetime of lessons already. Within hours of birth, Josie began having seizures. Watching our tiny baby seize over and over again while medications failed and doctors were left without answers was the most difficult time of our lives.

When we finally did get an answer, it did not come with any comfort. Josie has a mutation on the KCNT1 gene, which causes a very rare and severe form of epilepsy. There is no specific treatment, no cure. The few medical reports out there warn of other health issues, profound developmental delay, and a shortened life expectancy. Cerebral Palsy and Neurological Vision Impairment are also battles our daughter has to face.

Josie Is Beating Epilepsy & Cerebral Palsy Everyday

Josie is a happy baby and is beating the odds everyday. She is not defined by her diagnosis, and we refuse to let her capabilities and quality of life be determined by some medical report. Josie is proof that miracles happen everyday and that someone's diagnosis will never be an indicator of their strength and resilience

Honestly, we wouldn't change Josie for the world. It's an honor to walk through life with someone who has such a special soul and big purpose. Now we choose to focus on the good moments of each day and continue to fill Josie's days with as much love and happiness as possible.

Follow Josie's Journey on Instagram: @jennyleepark

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