My Rare Bone Disorder: Osteogenesis Imperfecta
The name "Sierra" in Spanish translates to mountain range. A mountain range is a line of mountains connected by high grounds. When thinking about all the struggles I've endured in my life, I remember this. I've been forced to climb all of these mountains, and as difficult as it may have seemed at the time, I always make it to the other side.
I was born with a rare bone disorder called Osteogenesis Imperfecta, also known as brittle bone disease. Despite this, I never understood the meaning of the word "limitations". I have always been an active kid, whether it's playing soccer or riding dirt bikes. The fear of breaking yet another bone (there's been many) never stopped me from doing what I love.
Osteogenesis Imperfecta And Traumatic Brain Injury
On October 4th of 2015, I was in a bad accident. It resulted in my 6th and most severe concussion yet (TBI), a shattered/fractured elbow that now has screws holding it together, a broken nose for the second time and neck/spine injuries. My life was on the line, and doctors told my parents to prepare for the possibility of me being paralyzed for the rest of my life. Between my brittle bone disease, traumatic brain injury and the mental aspect of this accident, I had a lot on my plate. The chances of my arm ever being able to function properly again was slim.
Raising Awareness For Osteogenesis Imperfecta And Traumatic Brain Injury
I worked my tail off at physiotherapy, doctor's appointments, and at my own home based exercises. My TBI forever changed my personality and left me with life long side effects. However, I am able to walk and run, and use my arm almost the exact same way I could before. Now I'm participating in an upcoming run for our children's hospital that I receive treatments at for my brittle bone disease. It's saved my life in more ways than one. This 5k is more mental health in kinds and helps their department grow. So far, Ive raised almost $500. Since my accident, it's become a mission of mine to raise awareness for Osteogenesis Imperfecta and traumatic brain injuries through my own personal experience. Advocating means making a difference in the lives of others, which is truly an amazing feeling.
I know I'm going to continue to face multiple struggles, but I'm strong and independent and know that I have a good head on my shoulders. I'm a fighter, and can get through any obstacle.
