HOBBIES

Living a Colorful Life with a Rare Disease

Rare Disease & Syndrome

Yoav Gaon

Looking at the glass half full despite having a rare disease

My name is Yoav. I am the co-founder of yoocan and the father to Erez, an amazing boy who was born with a rare disease and complex disability. When Erez was born, we didn’t know what to expect. The odds were against us and the doctors were pessimistic. We understood that we needed to focus on his quality of life rather than try to fix him through uncertain surgeries. Once we started looking at the glass half full and searching for his small accomplishments and positive strengths, his beautiful soul came out and also his abilities. 

Today, Erez learns in a high-functioning class in a special school. He is also a helpful carpenter to me and I see that this passion helps him develop his motor skills and enforces muscle use and cognitive understanding. This activity also helps him feel a sense of accomplishment each step of the way. You can see in the photos that we are building a chair. We take each day slowly with a consistent pace.

Like Erez, there are over 1 billion people in the world living with some kind of cognitive or physical disability, striving to live a better, more inclusive life, and fulfill their dreams. There are solutions and opportunities around the world that can help, so no one feels alone. That is why we created yoocan!  We invite you to share your experience and knowledge and take part in our global collaborative community.

Find out more about Erez on Instragram: @yoavgaon.

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