Hi! I'm Sylwia Woch (Sissi Chiari). I'm 24 years old. I'm from Poland. I was born at 26 weeks gestation. I weighed only 950 grams. The doctors scolded me at the very beginning. They gave me no chance of survival. I was supposed to be a "plant", a "vegetable"... However, this did not happen. Let's go back to the beginning of my story. During the pregnancy, the doctors told my parents that they were expecting twins. Everything was going perfectly, until that fateful day, my mother's waters broke. The doctors thought they would be able to keep the pregnancy, however, there was a hemorrhage and they had to quickly perform a C-section. It turned out that my twin was a one-and-a-half-kilogram muscle that was pressing on the left side of my body. When they wanted to pull it out, the doctor put his hand under it, and it came out on its own without any interference from a scalpel.
After I was born, my parents heard these terrible words: "Nothing will come of her... She will be just a lying plant, a vegetable..." However, this did not happen, because I was such a strong girl. On the first day after birth, I had already ripped the tubes from my nose and throat that helped me breathe. In my mother's chart, the doctors wrote that she gave birth naturally. And mine said that I was 10 pounds. After that, everything seemed to be fine, until two months later, on the day of my discharge from the hospital, My parents were informed that I was blind. I had retinopathy of prematurity, so I was transported to another hospital, where they saved my sight. Later, I returned home normally.
When I turned a year old my parents were concerned by the fact that I was not sitting up, crawling, or walking on my own. They referred me for tests, such as an ultrasound, EEG, and the like, but the tests showed no changes in the brain. They suspected that I was suffering from Cerebral Palsy. However, after seeing the test results, they said they didn't know what I had and just pulled me under the aforementioned palsy. Later, during a hip examination, I was diagnosed with hip dysplasia. For which I had more than a dozen surgeries (I have plates, screws, and wires in my hips). Most of these I had between the ages of 3 and 7. I spent my childhood in hospitals. I had my first surgery to insert plates, wires, and screws at the age of 6. At that time I wore a cast from the waist down for 6 weeks, which, as it turned out, was misplaced, causing the bones in my left calf to be twisted and the toes in both feet to be crushed. A year later the doctors wanted to take them out of me and when they opened the wound it turned out that nothing had healed, so they closed it back up. After this operation after 7 years, my leg started to bother me again. We went to a professor, who referred me to another operation during which it turned out that the femur in my right leg began to rot. I was in danger of leg amputation. However, the doctors managed to save it. They cut off only 3 centimeters of my femur. Because of this, my right leg is shorter than my left. After this operation, I could not stand on my left leg. It turned out that the screw in the left leg was screwed in too far. As a result, there was damage to the nerve. I also had botulinum toxin injected under general anesthesia and the tendons in my groin, under my left knee, and in my feet were cut. After the penultimate surgery, I could not wake up. I fell into a coma for almost four days. I had several resuscitations and blood transfusions during an operation. After these, my heart became very weak and the doctors said that I couldn't have any more surgeries because I simply wouldn't survive them. On top of that, six years ago I was diagnosed with hypothyroidism. Which makes everything a little more difficult. And in between all this, I'm trying to live a normal life!
A bit more about me:
I trained professionally in wheelchair ballroom dancing for 2 years. I am currently on a break but would like to get back to it. In 2013, I trained Boccia professionally for 1 year (BC2). I like to read books, and I'm crazy about sports. I'm learning to play the piano, and I love art in every form.
Insta: sissichiariofc
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