My diagnosis
I have fibromyalgia- this looks like muscle pain, exhaustion, fatigue, and personally also heat exhaustion. No doctors really know where it comes from and what the starting point of having fibro is, but some theories say it’s related to trauma. I do know that from all the theories this one is the probable reason for me to have fibromyalgia at such a young age.
We started to look for a diagnosis when I was 14. I got diagnosed 2 years later with fibromyalgia, which is rare for someone so young. The major problem with having such a rare diagnosis is that there's no representation. Two years after the initial diagnosis, I started needing a wheelchair, but it has been difficult to find mobility aids.
This is why I want to be the representation. I hope to talk about fibromyalgia among youth and explain its importance. I've been doing cosplay for 3 years, which has been crucial in my representation journey. Cosplay helps me show what life is like as an ambulatory wheelchair user and demonstrate the difficulties behind it.
I still hope for more help from our government. I hope living will get easier. I hope it will get easier for me and for everyone else with fibromyalgia.
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