Getting used to my new normal

I love me, disabilities and all

In 2020 my whole life changed. I experienced my first cluster headache (also known as suicide headache). I’m a chronic sufferer, meaning I never get a day off, and they are the worst pain I have ever experienced. I was experiencing more than 8 attacks a day and I was utterly exhausted. I was so embarrassed of having an attack in front of anyone as I tend to bash my head and become extremely agitated so I stopped seeing people and stopped going outside. The cluster headaches caused other underlying health conditions and disabilities to become more noticeable. I have now also been diagnosed with hypermobile Ehlers-Danlos syndrome, chronic fatigue syndrome, POTS, and chronic migraine. Everything combined has affected my mobility. I can no longer work, and most days I can’t look after myself. It felt like my whole life and identity had been ripped away. I felt worthless, like a burden. I was diagnosed with agoraphobia, severe depression, and anxiety. It’s taken a lot of hard work to put my mental health in a good place and embrace my new way of life but I am now proud of my body for fighting so hard. I have realized that everything I go through with my health has and will continue to make me stronger. Yes I’m always in pain and some days are going to be harder than others but that’s okay. I’m so proud of my disabled self. I am me I am awesome and I love being me ❤️