MD- My Determination

GNE Myopathy

Hello friends! My name is Aliciah and I’m from Oklahoma City. I was born with a genetic mutation called GNE myopathy- which is a form of muscular dystrophy (MD). To inherit this condition, both of my parents had to be carriers. Even though I was born with it, myopathy didn’t start affecting me until I was about 21-22 years old. I started falling out of nowhere, I couldn’t go upstairs and I noticed that my walking was becoming difficult and painful. I also experienced extreme muscle loss. After three long tiring years of seeing multiple specialists, I was finally diagnosed with MD last year. Now at the age of 26, I have to use a walker to get around my apartment and a wheelchair to enjoy activities. I’m still able to do things most people can, I just need a little assistance, but I am not complaining! :) So to my friends that have a disability- love and cherish yourself more than ever before, and more than anyone else. There’s a positive ASPECT IN EVERY PART OF OUR LIVES. Be gentle and kind to yourself. Sending love, healing, prosperity and light to each and everyone. WE ARE STRONG! 💚